Some journeys are personal, some journeys aren't. This is a Canadian journey to be shared with the hope of learning, helping and educating others along the way.
I'm an open book..... I hope you enjoy the read.
TARLOV CYSTS - Canada the misinformed!!!
The rare diagnosis of Tarlov Cyst Disease poses significant challenges in the realm of medical care.
Most Canadian Medical Practitioners lack the expertise to accurately diagnose, treat, or manage this condition. As a result, patients often find themselves navigating a healthcare system ill-prepared to address their needs, leaving them feeling lost, scared, and isolated. This lack of medical understanding perpetuates feelings of misinformation and uncertainty among Canadian patients.
Through this blog, I aim to share my journey of navigating the Canadian Healthcare system while living with multiple rare disease diagnoses. I have dedicated myself to learning as much as possible about my rare diseases, hoping that my experiences and hard-earned self-education can support and guide others on their own rare disease journey.
Together, let's shed light on the challenges those living with rare diseases face and work towards a more compassionate and informed healthcare system.
