TARLOV CYSTS - Canada the misinformed!!!

The Rare Diagnosis of TARLOV CYSTS can be a difficult illness to diagnose. The Canadian Medical community is confused and ill equipped to diagnose, treat, manage or even recognize the symptoms, causes and current possible treatments. This confusion is accomplishing nothing, but keeping Canadian patients misinformed and feeling lost.


With my own personal experience of navigating the nightmare facing Tarlov Patients in Canada I am committed to challenging myself to learn as much as I can with the hope of helping deal with my own issues surrounding this diagnosis, while also helping others navigate the system during their own personal journey.


Thursday, May 31, 2012

Letter From The Simcoe Clinic Re: Healthcare Budget Threatens Ontario Chronic Pain Clinics


Health Cuts Threaten Chronic Pain Clinics

As if we don't already have enough problems!!!!

Tarlov Cyst Patients across the Country have been fighting for Out of Country Care for many years, and while we still haven't gotten far in our effort for change, and increased options for relief we're forced once again by the McGuinty Government and Deb Matthews, Ontario's Minister of Health, to accept even more cuts to the only solution we have left?

Now they're targeting Pain Clinics and our chance at living a somewhat, normal life.

According to Simcoe.Com, an article written by  Chris Giorshev, MD Tariff Chair, OMA Section on Chronic Pain Medical Director, The Simcoe Clinic, Chronic Pain Care "Chronic pain clinics in Ontario may be forced to close due to new government fee cuts.  Patients will be abandoned and healthcare costs will rise. This is bad news for everyone. Chronic pain in Ontario is a serious problem." 

In addition, the letter states these changes will affect 15-19 % of the population making chronic pain more common than asthma and diabetes. He believes the consequences can be devastating when you add the increased rates of suicides and depression that chronic pain patients suffer.

According to the May 24th letter, "Canadian, workplace costs associated with chronic pain cost the system more than $37 billion per year and their healthcare costs are staggering at over $7 billion per year.  Fortunately chronic pain clinics exist to address these issues."


Please visit the article at the above link to read this letter in full.
Tarlov Cyst Disease patients are but a few of the rare disease, and chronic pain sufferers that will be affected by this massive round of cuts. So as Chris Giorshev says in his letter to Simcoe.Com, please do what you can to let the government know that chronic pain patients deserve to be treated properly.  
Contact your MPP. It’s in everyone’s best interest. 




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