TARLOV CYSTS - Canada the misinformed!!!

The rare diagnosis of Tarlov Cyst Disease poses significant challenges in the realm of medical care. Most Canadian Medical Practitioners lack the expertise to accurately diagnose, treat, or manage this condition. As a result, patients often find themselves navigating a healthcare system ill-prepared to address their needs, leaving them feeling lost, scared, and isolated. This lack of medical understanding perpetuates feelings of misinformation and uncertainty among Canadian patients. Through this blog, I aim to share my journey of navigating the Canadian Healthcare system while living with multiple rare disease diagnoses. I have dedicated myself to learning as much as possible about my rare diseases, hoping that my experiences and hard-earned self-education can support and guide others on their own rare disease journey. Together, let's shed light on the challenges those living with rare diseases face and work towards a more compassionate and informed healthcare system.

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Monday, September 25, 2023

IN CANADA, our right to die has become easier to access than our right to live with dignity.

CANADIANS WITH DISABILITIES NEED YOUR HELP!


PLEASE SHARE, READ, AND TAKE ACTION!


The link attached below will bring you to one of the best examples I've seen that discusses what's happening in Canada today, as our right to die becomes easier to access than our right to live with dignity.

Canada used to be known as a Country with compassion, but today, we're gaining a reputation as the nation that leaves behind its most vulnerable.

According to No Options, No Choice, 

"Many Canadians living on the margins of society do not have access to the services they need, like palliative care, mental health services, and support for people with disabilities. Their needs can be as basic as lack of housing, food, companionship and financial support. Without access to quality care and resources that would meet their basic needs, their options become limited, and without options, there are no choices."

Without the basics of life, how can anyone move forward from living with the basics of life to flourishing? 

They often can't. 

When you're already living with the excessive challenges that come with disabilities, everything else becomes an even greater challenge to overcome. For some, these challenges are easier to manage, while for others, depending on the disability, they become insurmountable, and this is when programs like MAiD become weapons instead of solutions to a problem.

"At the same time, access to MAiD has been expanded in Canada since its introduction in 2016. In March 2021, the federal government passed revised legislation that changed the eligibility criteria and procedural safeguards for MAiD. The new law grants Canadians with chronic illness or disability who are not terminally ill, the right to seek MAiD.

When they are at their most vulnerable, people may choose MAiD if they don't have suitable options.

We have a social responsibility to help people live their lives on their own terms. When Canadians are at their most vulnerable, they should be provided with meaningful options to live before they are provided with options to die."

What can you do to help?

"Everyone has a role to play. Provincial governments need to enhance their current financial and program commitments to ensure all Canadians can live with dignity. We can all reach out to people we know in our area to provide a helping hand. Churches, NGOs and community groups can equip and coordinate these efforts. We need to restore our Canadian reputation for compassion."
To learn more, please visit:
We do all have a role to play in helping to resolve this deadly Canadian-made and growing problem. I hope you'll join us in the efforts made by a growing number of Canadians who believe that persons who live with disabilities deserve more than what they're living with in Canada today.  

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