TARLOV CYSTS - Canada the misinformed!!!

The rare diagnosis of Tarlov Cyst Disease poses significant challenges in the realm of medical care. Most Canadian Medical Practitioners lack the expertise to accurately diagnose, treat, or manage this condition. As a result, patients often find themselves navigating a healthcare system ill-prepared to address their needs, leaving them feeling lost, scared, and isolated. This lack of medical understanding perpetuates feelings of misinformation and uncertainty among Canadian patients. Through this blog, I aim to share my journey of navigating the Canadian Healthcare system while living with multiple rare disease diagnoses. I have dedicated myself to learning as much as possible about my rare diseases, hoping that my experiences and hard-earned self-education can support and guide others on their own rare disease journey. Together, let's shed light on the challenges those living with rare diseases face and work towards a more compassionate and informed healthcare system.

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Thursday, March 31, 2011

OHIP Application

So today was the deadline for applying for Out of Country Care coverage; that is, it's the last day that applications received before April 1st will be adjudicated under the new regulations.

So I did it. I managed to get the application faxed in today and now it's just a matter of wait and see.

Wow.... knowcks the wind out of me just to think, "what if I do get approved?" Am I really ready?

One day at a time... that's all I can do is take it one day at a time... I'll let you know how simple (doubtful), or our difficult (more likely) the process goes.

Wish me luck!
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