TARLOV CYSTS - Canada the misinformed!!!

The rare diagnosis of Tarlov Cyst Disease poses significant challenges in the realm of medical care. Most Canadian Medical Practitioners lack the expertise to accurately diagnose, treat, or manage this condition. As a result, patients often find themselves navigating a healthcare system ill-prepared to address their needs, leaving them feeling lost, scared, and isolated. This lack of medical understanding perpetuates feelings of misinformation and uncertainty among Canadian patients. Through this blog, I aim to share my journey of navigating the Canadian Healthcare system while living with multiple rare disease diagnoses. I have dedicated myself to learning as much as possible about my rare diseases, hoping that my experiences and hard-earned self-education can support and guide others on their own rare disease journey. Together, let's shed light on the challenges those living with rare diseases face and work towards a more compassionate and informed healthcare system.

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Saturday, June 11, 2011

Epidurals, Myelograms, Lumbar Punctures; Beware, it may come back to haunt you.. (Click here for video)

On May 19th, 2011, I posted a story supplied by Louise Cabonneau Vermeiren titled,


 "Please Help Raise Arachnoiditis Awareness"



Today, thanks to Sharon Gillece, an Arachnoiditis and Tarlov Cyst Patient, I'm able to connect you to a short, although maybe older, youtube video that helps describe the cause, symptoms and confusion surrounding a diagnosis of Adhesive Arachnoiditis.

Please remember, there are many things our Doctors don't tell us, and not everything comes with a warning label. I hope this post can help prevent you from ever having to suffer the possible, and devastating effects of Epidurals, Myelograms or any other type of Lumbar/ Spinal Cord Puncture. 

We are, and always must be, our own health advocate!  
Please pass it on.........
Sherri
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