Are you Canadian? Have you been diagnosed with Tarlov Cyts Disease?

I'm sure you can see from this blog that most of what I write about is Tarlov Cyst Disease. 

Since this blog began, most responses to entries and views on the stat-counter are from Tarlov Patients, Medical Clinics, Physicians, Hospitals, Journalists and Writers from around the world.

Canadian Citizen Daily Battles

is looking

for

Canadian Tarlov Cyst Patients

Symptomatic and/or Non-Symptomatic

I am looking to find as many Canadian Tarlov Cyst Disease sufferers as possible to build a database of issues, experiences and references, enabling us to learn from each other and support each other through the many individual problems facing Canadians across Canada. 

I know through research that there have been a minimum of 17 Ontario WSIB Cases, and I couldn't even guess how many other Tarlov patients there are out there, unaware that Tarlov Cysts may be the one thing causing the many back and Neurological problems they are experiencing. 

Many different forms of Trauma-related injuries, including slips and falls, motor vehicle accidents, work-related injuries and many other forms of injury, bring on most symptomatic Tarlov Cysts.

It seems that the "Rare" part of Tarlov Cyst Disease perhaps isn't as rare as I, or any of us, may have thought initially. There are many more cases in Canada than any Canadian patient has been led to believe. It's time to reach out and say, "Hello"! 

I'm now publicly reaching out to every 

Tarlov Cyst Patient I can find living within Canada.

 The aim is to learn from each other. 

Learn your stories, find out about your Journey, 

the benefits and the barriers provided by our 

Municipal, Provincial and Federal Service Providers

and our Provincially managed 

Canadian Medical and Legal Systems.

Please create a new email, with a pen name if you need to protect your identity. 

All confidentiality will be maintained, and your name, and story will not be shared until you choose to do so, but I would need to be able to add your information to your Province list, which would include the following; 

• diagnosis details
• diagnosis date
• a short, personal statement written by you, providing basic information of your personal experience.

I am hoping to bring together ALL Canadians in the fight for recognition of this "rare" but devastating Disease. 

I'm confident we all have skills, experience and information, either past or present, that may be able to assist others with their fights with Physicians for care and Neurological Communities in our push for acknowledgement and understanding. 

We must educate Compensation Boards and Insurance Companies to protect valid Legal Claims for justified and entitled rights for trauma victims across Canada.

Together, we are stronger; Together we are no longer alone.

Please email 

Sherri Jones at:

sherri.jones@live.ca 

 I will get back to you through email as soon as possible.

ALL CONFIDENTIALITY WILL BE RESPECTED UNTIL INFORMATION RELEASES APPROVED.

Thank you for your time....I  look forward to hearing from you!!!!

Sincerely, 

Sherri L. Jones