TARLOV CYSTS - Canada the misinformed!!!

The rare diagnosis of Tarlov Cyst Disease poses significant challenges in the realm of medical care. Most Canadian Medical Practitioners lack the expertise to accurately diagnose, treat, or manage this condition. As a result, patients often find themselves navigating a healthcare system ill-prepared to address their needs, leaving them feeling lost, scared, and isolated. This lack of medical understanding perpetuates feelings of misinformation and uncertainty among Canadian patients. Through this blog, I aim to share my journey of navigating the Canadian Healthcare system while living with multiple rare disease diagnoses. I have dedicated myself to learning as much as possible about my rare diseases, hoping that my experiences and hard-earned self-education can support and guide others on their own rare disease journey. Together, let's shed light on the challenges those living with rare diseases face and work towards a more compassionate and informed healthcare system.

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Tuesday, April 9, 2013

This Monster Inside of Me, by MJ



This monster inside me laying in wait 
for the slightest 
excuse to flare, 
explodes with gut wrenching lashes of pain, 
no sympathy to spare. 

You can stroke it, pamper it, 
submit to its blackmailing greed, 
but no matterhow careful, 
I cannot appease it; I cannot be freed.

This monster inside of me trapped in his cage. 
All over my body he takes his rage.
Lost in the fog from morning til night
It's hard not to be consumed with fright.

This monster inside, doing its best to cripple,
somedays it takes no more than a ripple.
Because he is hidden no one believes

This monster inside of me makes me grieve.

- MJ

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