TARLOV CYSTS - Canada the misinformed!!!

The rare diagnosis of Tarlov Cyst Disease poses significant challenges in the realm of medical care. Most Canadian Medical Practitioners lack the expertise to accurately diagnose, treat, or manage this condition. As a result, patients often find themselves navigating a healthcare system ill-prepared to address their needs, leaving them feeling lost, scared, and isolated. This lack of medical understanding perpetuates feelings of misinformation and uncertainty among Canadian patients. Through this blog, I aim to share my journey of navigating the Canadian Healthcare system while living with multiple rare disease diagnoses. I have dedicated myself to learning as much as possible about my rare diseases, hoping that my experiences and hard-earned self-education can support and guide others on their own rare disease journey. Together, let's shed light on the challenges those living with rare diseases face and work towards a more compassionate and informed healthcare system.

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Thursday, May 31, 2012

Health Cuts Threaten Chronic Pain Clinics

As if we don't already have enough problems!!!!

Tarlov Cyst Patients across the Country have been fighting for Out of Country Care for many years, and while we still haven't gotten far in our effort for change, and increased options for relief we're forced once again by the McGuinty Government and Deb Matthews, Ontario's Minister of Health, to accept even more cuts to the only solution we have left?

Now they're targeting Pain Clinics and our chance at living a somewhat, normal life.

According to Simcoe.Com, an article written by  Chris Giorshev, MD Tariff Chair, OMA Section on Chronic Pain Medical Director, The Simcoe Clinic, Chronic Pain Care "Chronic pain clinics in Ontario may be forced to close due to new government fee cuts.  Patients will be abandoned and healthcare costs will rise. This is bad news for everyone. Chronic pain in Ontario is a serious problem." 

In addition, the letter states these changes will affect 15-19 % of the population making chronic pain more common than asthma and diabetes. He believes the consequences can be devastating when you add the increased rates of suicides and depression that chronic pain patients suffer.

According to the May 24th letter, "Canadian, workplace costs associated with chronic pain cost the system more than $37 billion per year and their healthcare costs are staggering at over $7 billion per year.  Fortunately chronic pain clinics exist to address these issues."


Please visit the article at the above link to read this letter in full.
Tarlov Cyst Disease patients are but a few of the rare disease, and chronic pain sufferers that will be affected by this massive round of cuts. So as Chris Giorshev says in his letter to Simcoe.Com, please do what you can to let the government know that chronic pain patients deserve to be treated properly.  
Contact your MPP. It’s in everyone’s best interest. 




5 comments:

  1. Please everyone, friend, family and Ontario resident's that want to support their rights and the rights of all Ontario patients that suffers from chronic invisible pain PLEASE, CONTACT YOUR MPP. If we do not fight for our rights to have a quality of life they will keep making OHIP cutbacks. The majority of us are baby boomers, the older we get the chances of us requiring pain control is highly likely "you may be one of those patients or your love one" please voice your opinion and make that call.

    ReplyDelete
  2. If you take the time in go on the internet and type in Tarlov Cyst Disease you will see how many Tarlov patients there are all over the world, you will see how many support forums. This is a rare disease and just think you no someone who has it. It is me Lenie Wadleigh! Please change my name to yours if you are a Tarlov patient!

    ReplyDelete
  3. PAINFUL IN BARRIEJune 5, 2012 at 7:09 AM

    I agree that the recent cuts to Ontario's health care system have pushed sufferers of chronic pain even further to the periphery of society. Those of us who suffer from long-term pain know how chronic pain not only affects our bodies -- it alters our psyche. In my opinion, government policies that cut, or fail to adequately fund the treatments of chronic pain conditions, are policies that subject chronic sufferers to the physical abuse of their medical conditions.
    No matter how government funding cuts to chronic pain clinics is politically spun, it is simply easier to make cut to the most vulnerable because they we are the least able to defend ourselves.

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