TARLOV CYSTS - Canada the misinformed!!!

The rare diagnosis of Tarlov Cyst Disease poses significant challenges in the realm of medical care. Most Canadian Medical Practitioners lack the expertise to accurately diagnose, treat, or manage this condition. As a result, patients often find themselves navigating a healthcare system ill-prepared to address their needs, leaving them feeling lost, scared, and isolated. This lack of medical understanding perpetuates feelings of misinformation and uncertainty among Canadian patients. Through this blog, I aim to share my journey of navigating the Canadian Healthcare system while living with multiple rare disease diagnoses. I have dedicated myself to learning as much as possible about my rare diseases, hoping that my experiences and hard-earned self-education can support and guide others on their own rare disease journey. Together, let's shed light on the challenges those living with rare diseases face and work towards a more compassionate and informed healthcare system.

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Thursday, May 31, 2012

Ontario Health Coalition: Ontario-Wide Tour to Visit 15 Communities Warning of Ontario Budget Cutbacks to Health Care



  • Ontario-Wide Tour to Visit 15 Communities Warning of Ontario Budget Cutbacks to Health Care 
    Most Ontarians don’t realize that the McGuinty government’s recent “austerity” budget will catapult the health system into another round of cuts and restructuring. With this warning, the Ontario Health Coalition is launching a 15 city tour across Ontario to prepare citizens to stand up and protect local access to health care services. The government’s budget for health care is worse than even the most radical of recommendations. With the harsh new budget, the government is planning another major round of cutbacks and restructuring that will particularly hurt patients who need hospital care, nursing home placements, outpatient clinics and long-term care. We are holding a town hall meeting to discuss the government’s plans and what they might mean for our local communities. We don’t want to see any more hardship as a result of patients unable to access the care they need. With the town hall meeting, we will launching an action plan to protect each region’s health services from further cuts.

    Please click below for our full media release and *updated* details of the tour

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